Thursday, February 28, 2008

Carnival of MS Bloggers #5

Welcome to the Carnival of MS Bloggers, a bi-weekly compendium of thoughts and experiences shared by those living with multiple sclerosis.

Merelyme discusses her ballerina toes - or maybe it was she who said that she had "No Use For Toes."
"Okay so I will never be a ballerina. Mostly my toes get used for lifting me up so I can see better in crowds as I am on the short side. Five foot two, eyes of blue, koochie koochie koo. Other than that, my toes don't serve much purpose other than peeking out from summer sandals."
But the toes can be useful in revealing information regarding neurological damage. The Babinski's sign, determined by a test which involves drawing a semi-sharp object along the bottom of the foot, is present if the big toe moves upwards and/or the toes fan out. The normal response in adults and children is for the toes to reflex downwards.

"So what was I saying? Oh yes...I will never be a ballerina. This was confirmed by my neurologist, who after performing real doctor tests in her office chided, "Well you are no ballerina are ya?" And you know...I am okay with that. My toes are just fine about hanging out in sandals or comfortable sneakers. They have had their day in the sun and could wish for little more. Perhaps one day I will break down and treat them to a pedicure. I think they deserve it, don't you?"

Announcing the birth of a brand new MS Blog, Me Myself and MS, coming to us from the UK.

Emma shares the history of her symptoms from optic neuritis in 2000 (just like me), the diagnosis in 2006 after her 1st relapse, and subsequent relapses #2, #3, and currently #4.

Let's all welcome Emma to the MS Blogger Club.

Speaking of MS blogs, Carolyne's MS Odyssey announces a new look for the MS Means website... The site is newer, slicker - with a black background and the ability to change text size. While MS Means has been undergoing major changes, so has Carolyne as she adjusts to a new, more restricted lifestyle due to MS fatigue.
"Well, I have always believed that life is not about finding yourself, but about creating yourself. I am creating a new “me” as I go through this process - but I am well assured that the basics of who I am are still intact."

For Privacy’s Sake: Let’s Be Careful Out There! - MS Maze
"I can’t even begin to guess the number of health-related blogs which exist. Most are written by and for people who have been diagnosed with a chronic condition. The authors are looking to lend their support as well as to receive it. At the risk of sounding our own horn, we are a very well-intentioned group of people.
"In our effort to enlighten and entertain, we often share very personal information. We tell of our diagnosis, our prescribed medications, our trials and tribulations. We spill out our heart and soul. At the push of a button, this information is available for all the world to see and, once set free on the world-wide web, can never be taken back."
Mandy has some wonderful thoughts about knowing where to draw the line. So let’s do be careful out there!

Sharing her inspiration, Diane tells of her experiences, past and present, in search of ways to connect with others who live with chronic illness in "Strong Together As One, Let Us Fly."
"The idea for putting together a list of 100 chronic illnesses came as I was watching Richard M. Cohen, author of "Blindsided: Lifting a Life Above Illness: A Reluctant Memoir,” speaking about the next book he was working on, during a live appearance on the Don Imus TV show. Mr. Cohen spoke of the horrible job the medical community and our country does of understanding the lives of those who live with chronic illness. Mr. Cohen has MS, and I open his book often for inspiration. I couldn’t wait to read his next book as the topic was something I had been learning to grapple with for most of my adult life."
Inspired by BrainCheese's 100+ MS Blogroll, Diane set out on a quest to find 100 blogs written by those who live with chronic illness. What were the requirements? The blog had to be personal, no sales or medical information types, no agendas involving religion or societies, a diversity of bloggers and a spirit of life beyond an illness box was a must. Diane's list is a wonderful resource for us all.
"And on that day when we cannot walk and words can come no more, we still stand together. When we no longer break bread with one another, still we will sit at the same table. Our hearts will stay strong. In thought and with spirit, we will fly. Our own compasses point the way, and the winds forever will be at our backs.”

- Richard M. Cohen, author of “Strong at the Broken Places, Voices of Illness, a Chorus of Hope"
In conclusion - and "In Honor of the Academy Awards - Oscar Night for SiCKO" - I share my 'almost famous' story with you. Michael Moore and Meghan O'Hara may not have won the academy award but I certainly have gained much from my ever-so-brief experience with them.

Remember, the next Carnival of MS Bloggers will be hosted here on March 13, 2008. Please remember to submit a post (via email) from your blog of which you are particularly proud, or which you simply want to share, by noon on Tuesday, March 11, 2008.

Thank you.
Comments for this Post


  1. Thank you for including my post. Thanks for the hard work you put into this.

  2. Diane's writing is always on target. Glad to see that you found beauty in her style. She has a great way with words.

  3. Diane did a wonderful job on that blog roll too. i have learned so much about other conditions. Enjoy reading your carnival. Nice idea. HHJoy

  4. Just popped over to have a peek. Wow..I must say I'm impressed with the level of your expertise on MS. I've learned a lot reading Dine's blog and I'm sure I will with yours also. I don't have MS but I have always been facinated by people who overcome any obsticals within their lives. if we stop and listen fora while we can learn great things from everyone.
    You're something else. Maybe because you're an 'Okie' ?
    I raise my glass to you.

  5. One more thing. I was a ballerina in my younger days. The pic of the girl on pointe was great. But I must say your feet are quite pretty! Dancing on pointe makes toes ugly!!! In a silly way I envy your toes. :) Isn't that the most ridiculous thing ever?
    It is wht it is, right?

  6. Thank you for sharing this. I know it has to be quite a project, but your calling to do it has such a purpose. I appreciate being mentioned, and look forward to be parting of a community now that I am out of denial!

    Peace & Blessings,