Showing posts with label Communication. Show all posts
Showing posts with label Communication. Show all posts

Tuesday, October 24, 2017

What Do I Mean When I Say I'm Fine?

Living with a chronic condition, such as multiple sclerosis, brings with it a heavy load of emotional, physical, and social challenges. The symptoms alone can be perplexing and are never the same between two people. Lately, there’s one social challenge that has been on my mind—how to respond to the question, “How are you?”
When in a group setting, I almost always respond with “I’m fine,” or “I’m good,” without thinking about it. An upbeat “I’m fine” is automatic. When in a one-on-one setting, I may pause and consider how exactly I want the conversation to go. If I’m with a very close friend, I might expand my response and go into more detail, regardless if the update skews positive or negative.
When talking to my husband, I want to be honest but I also know how much he wants me to feel well. Depending upon what type of support I need at the moment, I might allow my empathy for his feelings to color my response. I don’t like to feel as though I am dumping all my crap on him. But when I need extra support or understanding, I feel safe in sharing what’s really going on and how I feel about it. When I tell my husband “I’m good,” it generally means I feel confident that I can manage things at the moment.
Earlier this summer, I was experiencing increased pain due to knee osteoarthritis and was seeking care from my orthopedic doctor who prescribed a series of injections. My mother-in-law has had her own knee problems, so she felt sympathy for what I was going through. I visited her following one of my knee injections and she asked how I was. My response was a neutral “I’m okay.” Her brow furrowed and she replied, “Not good, then?” “No, I’m doing fine,” I insisted. Her experience colored how she heard my simple words.

Read this post in its entirety:
The Many Shades of I'm Fine

Thursday, May 8, 2014

Sex and Rheumatoid Arthritis

So today, let’s talk about relationships and sex.  One of the most important aspects of any relationship is open communication.  A relationship without open communication makes it difficult for individuals to connect mentally, physically, or emotionally.  Sexual activity provides more than a physical connection, it binds people mentally and emotionally as well.  It also increases blood flow and releases endorphins which serve as the body’s own pain relievers, both which are good for RA.

Open communication requires a willingness to be honest.  Rheumatoid arthritis may cause changes to the body which make sex more challenging.  You may experience pain and stiffness which interfere with comfortable movement.  Fatigue and depression (which are common with RA) may get in the way of desire and libido.  Medications you take for RA may also impact libido and sexual response.  Or your body may seem fragile, making your partner fearful of causing you additional pain or physical damage.

Communicate with your partner about your concerns and do not be afraid to ask for what you need to be more comfortable.  Since RA can affect mobility and range of motion, experiment with different positions to avoid placing stress on parts of your body that are hurting or weak.  Rolled-up towels or blankets, pillows, specially-designed furniture, or props can be used to support your body.  The Department of Orthopaedics and Sports Medicine at the University of Washington offers tips for communication and new positions to consider when you have arthritis.  However, please be aware that if you have RA in the spine, in the neck specifically, it can be very dangerous to put any pressure on the neck during sex. 

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How Can I Improve My Sex Life with RA?