Gratitude for MS Friends Worldwide

I remember when several of us MS bloggers had a chance to meet in person for the first time. Meeting face to face and getting to know one another was a transformative experience; since that initial gathering we’ve become longtime friends, continuing to meet whenever we can and frequently communicating and supporting each other online.

During the past seven years, I have been fortunate to travel throughout the country to advocate for MS patients. I’ve participated on panels and spoken at conferences. I’ve even traveled to Switzerland twice to represent the interests of MS patients.

Now, I am more than a musician. I am a patient advocate, writer, speaker, consultant, educator, and champion. I also am just trying to live the best life I can with these unpredictable diseases.

Read this post in its entirety:
Why I Am ThankFul For My MS Friends Around The World

Ways To Connect With The MS Community

3. MS research
One of the first things my neurologist recommended after diagnosis was for me to sign-up for an MS patient registry that conducts longitudinal research through simple surveys. Two of the most prominent patient-based research initiatives in the US are iConquerMS™ which is patient-governed and sponsored by the Accelerated Cure Project (ACP), a non-profit organization in Boston dedicated to research, and the NARCOMS project which is run by the Consortium of MS Centers (CMSC).

4. MS publications
NMSS, MSF, and Multiple Sclerosis Association of America (MSAA) publish quarterly or bi-annual magazines that are delivered to your home. It’s as easy as signing-up. These magazines and select articles can also be viewed online in digital format which is great, especially if you want to share specific information with family and friends and you can link directly to the source. These organizations have also created large libraries of brochures on topics related to practically every aspect of living with MS.

Read this post in its entirety:

5 Wayst to Get Involved in the MS Community

Welcome Amy Back to HealthCentral

Exciting news! 

It's June, it's almost summer, and Amy Gurowitz - patient advocate, superb writer, and founder of the non-profit MS SoftServe - is returning to the MS HealthCentral team. Living with MS for 26 years, Amy combines humor with humanness in her writing, especially when it comes to discussing how MS impacts one’s life. 

Please subscribe to Amy’s posts so that you won’t miss a single article. And follow Amy on Twitter and Facebook while you're at it!

Follow me on Twitter and subscribe to my own posts, too. Check out the latest posts from the community here. 

Monthly MS newsletter

Be sure to subscribe to the monthly MS newsletter to have featured material delivered conveniently to your email on the third Friday of each month.

Read this post in its entirety:

MS Activist Joins MS HealthCentral Team-- And You Can Too!

Brass and Ivory Named Top 10 Social HealthMakers in MS

Recently, I was recognized by Sharecare.com as one of the Top 10 Social HealthMakers in the MS Community.  It is a pleasure to have Brass and Ivory: Life with MS and RA  included amongst such great influencers in the MS community.

Previously, I had been honored by Sharecare as one of the Top 10 Online Influencers in the RA Community. 

Thanks to Sharecare for the recognition and honor!!