Monday, December 7, 2015

Ways To Connect With The MS Community

3. MS research
One of the first things my neurologist recommended after diagnosis was for me to sign-up for an MS patient registry that conducts longitudinal research through simple surveys. Two of the most prominent patient-based research initiatives in the US are iConquerMS™ which is patient-governed and sponsored by the Accelerated Cure Project (ACP), a non-profit organization in Boston dedicated to research, and the NARCOMS project which is run by the Consortium of MS Centers (CMSC).

4. MS publications
NMSSMSF, and Multiple Sclerosis Association of America (MSAA) publish quarterly or bi-annual magazines that are delivered to your home. It’s as easy as signing-up. These magazines and select articles can also be viewed online in digital format which is great, especially if you want to share specific information with family and friends and you can link directly to the source. These organizations have also created large libraries of brochures on topics related to practically every aspect of living with MS.


Read this post in its entirety:

5 Wayst to Get Involved in the MS Community

No comments:

Post a Comment