Sunday, November 7, 2010

Interview with Marc, Wheelchair Kamikaze (Part Two)

Welcome back.

Switching gears. There are no proven effective treatments for PPMS, could you give us a brief run-down of the treatments you have tried over the years? Have any of them proven effective for you over time?

I can give you a rundown of the treatments I've tried over the years, but it won't be brief. Let's see, there was Rebif, IV steroids, CellCept, Tysabri, Rituxan, plasmapheresis, intrathecal methotrexate, the liberation procedure, natural and homeopathic remedies, dietary changes, intense physical therapy, and even anti-evil eye ornaments. As a friend of mine once said, at this point I'd be willing to crawl up the ass of a fat man if there was even the slightest chance it might help beat this disease.

At the moment of my diagnosis, I swore that I would fight this thing with everything I had. My MS neurologist is known as one of the more aggressive doctors out there, and I'm fine with that. Even though there are risks involved with all the treatments I've tried, at least there was the possibility, however remote, of some upside return. I know with some certainty where doing nothing will lead, and it's not a pretty place. If I'm going to go down, it will be with all guns blazing, both fists bloodied, and a steady stream of curses leaving my lips.

Read this post in its entirety:

Wheelchair Kamikaze: Marc discusses Life in NYC, Progressive MS, Relationships, and CCSVI (Part Two)

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