One of the community managers informed me of an upcoming MS Health Activist Panel. Basically, they are looking to get a small group of MS Activists (patients or caregivers who are active online) together to learn more about the community – topics, trends, common questions, etc.
They're doing this on behalf of a sponsor (ie. a pharma company who makes an MS therapy), so questions may be asked about current treatments and how the community feels about what’s out there right now. At this time, it looks like the panel is scheduled to continue through early 2011.
Below is the invite/announcement:
Join WEGO Health in their continued effort to empower MS Health Activists!
What will participation on WEGO Health's Panel of MS Health Activists involve?Vice President to participate on a panel of patient advocates in mid-November at a conference. They are paying me for related travel expenses.
They'll ask you to join them for three Panel Meetings - these meetings will last about an hour each and take place both online and on the phone. Panelists will also be invited to continue the conversation and share their opinions and experiences within the MS community online by participating in a private Group on WEGO Health.
Panelists will receive a $25 Amazon.com gift certificate after each meeting that they attend. Additionally, WEGO Health will make a $200 donation to the MS non-profit of the panelist's choice for each panelist who attends a majority of Panel Meetings.
If you're interested in participating, please take this survey to see if it might be a good fit for you:
Multiple Sclerosis Community Insight Survey
I signed up to participate in this MS panel. This may be an opportunity to be heard regarding real patient needs and desires. Or at least it's a good chance to learn what the sponsors want to know about us. ;-)
The first Panel Meeting is scheduled to take place on Tuesday, November 16, 2010.