Wednesday, September 10, 2008

How Am I Going To Pay For This?

The story continues.....

If you've been following MY STORY which I've been dragging out *FOREVER* (see links on sidebar), then you must catch the next saga.  I will very likely write much more about this chapter in my MS journey, but for now you get a rough/dirty version over at Health Central.

Here's a little teaser:

“Congratulations! You qualify for a 50% award!” says the woman from Shared Solutions.

What does that mean...50%?

“NORD (National Organization for Rare Disorders, Inc.) reviewed your application and determined that you are eligible to receive 50% of a year’s supply of Copaxone for free.”

Does that mean I have to pay 50% of the cost each month?

“No, it says here that you will get 6 months of Copaxone, will be responsible for paying shipping & handling ($100 every 3 months), and will be personally responsible for the other 6 months. That gives you time to save up for it.”

But I can’t AFFORD that!!

“If your financial situation changes during the year, you can appeal for additional help from NORD. I’d suggest doing that in the spring.”

To read the rest, go to "How Am I Going To Pay For This?"


  1. Hmmm...I think that's pretty slimy of them to word it that way. It does seem like you'll get it for half-off each month. God forbid they make it that easy.

  2. It just makes you want to skip healthcare. I just paid a $40.00 copay only so the doctor could order me two more appointments. WTF?

  3. I HATE Shared Solutions, even my Dr. trashed them. #$%^&*

  4. Kind of makes you want to emigrate to a country with universal health care, doesn't it? It is WRONG that there are meds out there to help people have some semblance of a normal life, yet they are only available to those who can pay. Without these meds we would be a bigger burden on society (or at least I would be)yet they only care about the $$$.

  5. I do not like today's marketing tactics. Most are decieving and most are wrong. I try my best to avoid doing businesses who do such marketing tactics.

  6. Hi All,

    Thanks for your comments and support.

    Don't know if you read the rest of the post over at Health Central. But if you did, then you know that this problem is larger than Shared Solutions, or NORD, or even insurance.

    This is the issue which made me mad enough to try to being telling folks exactly how ridiculous "the system" is. It got me interviewed on camera for Sicko and was the impetus for this blog.

    We gotta keep speaking out.