Wednesday, June 10, 2009

Living Day to Day with MS and RA

Whether it's the multiple sclerosis or the rheumatoid arthritis, it doesn't really matter. The result is that each day starts on wobbly footing for me and only time will tell if it will be a wobbly day. This is the reality of living with autoimmune disease. Only time will tell.

It is not guaranteed that each patient will experience the same symptoms or disabilities. Just as it is not guaranteed that each patient will slowly proceed on that downward slope with the disease or that they can stop it in its tracks with the various medications they take. There are no guarantees. No set-in-stone answers available to the questions of how to deal with the disease. What works for me may not work for you. What works for me today may not work for me tomorrow. I might not be able to function in the afternoon due to overwhelming fatigue which sets in out-of-the-blue. But to do my best each day is all I can do.

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  1. Lisa I really admire all the work you put into your blogs. I have an award for you if you get a chance to stop by and pick it up. Thank you for all you do

  2. Hello Lisa, Thanks for all you do. Reading blogs like yours and blogging myself helps see what others go through, sort through feelings and let them out.I believe holding feelings in just makes us more fatigued and causes jaw clenching pain. Your suggestions-have a good medical team, take breaks when you have to, make no excuses for caring for yourself,have a plan to control the pain.I am more compassionate to others by seeing others' journaling.