Saturday, February 21, 2009

New Bloggers: MS, Tysabri, Transverse Myelitis

Me, Myself, and Tysabri

My life has come to a stand still. Fact. It is at a point where changes need to occur or I will slowly wither away. All the things that define me as a person have been taken away from me. This blog will chart my attempt to regain a number of things that I feel MS has taken from me. My quest to regain my old self begins with starting on the Tysabri drug programme. This will give me the boost I need to focus on living life to the fullest with my beautiful partner. Let the journey begin......

Ramblings of Casey

I went to my neurologist to get the results of my lumbar puncture! All of the results were in except one. So far there is only one abnormality and it is the abnormality that the neurologist expected to be there. It basically says that there was/is an inflammation of my myelin sheath. So this confirms the diagnosis of transverse myelitis or multiple sclerosis. The test that would determine if it was multiple sclerosis is the one that is not back yet. No matter what the test comes back as I could still have multiple sclerosis (if it is early stages of ms sometimes it wont show up in the test) if the test is positive then I will be diagnosed with ms but if it comes back negative then I will be diagnosed with transverse myelitis unless I end up having a second attack. For both transverse myelitis or MS there is no cure just ways to manage the symptoms.


  1. Thanks for including me in your list of bloggers! I look forward to getting to read other blogs of people who understand what I am going through!

  2. Hey.. I'm very new to this, so I'm not quite sure of my way around.. I did a search for TM on Twitter and ended up finding a link to this page. Anyway.. I'm sure by now you've found out whether or not your diagnosis is TM or MS... (hopefully, at least). I was just diagnosed with MS this past November 2008.. Two years ago, however, I was diagnosed with TM. Apparently the cut off is 3 years between attacks.. Anything less than that is too soon and they suspect MS. My LP confirmed MS.. fun for me, right?

    Anyway, I'm not really sure what my purpose is in writing other than to let you know that I know what you're going through.. If you ever want to chat, please feel free to get in touch with me.. Since I'm not sure about all of this, I'll leave you my website: ... you can find my email address on that site!

    Good luck with everything!!!

  3. I have transverse myelitis. There are 2 great sites that I have come across. and The first one deals with TM specifically, while the second one focuses on other spinal cord diseases as well. Hang in there -- best of luck to you!