Thursday, February 5, 2009

Sharing MS with Your Children

Yesterday, Julie shared an excellent post, Telling my Kids, in which she describes discussing multiple sclerosis with her children.

“It was shortly after that when I started talking very openly in front of my kids about having MS. It was on my mind a lot so I brought it up a lot. Instead of waiting for the questions, I integrated talk about MS into my conversation. It wasn't in a complaining way. Instead, I welcomed it into our household instead of holding it at bay. If I didn't feel like making dinner, I didn't think twice about saying "Looks like peanut butter and jelly sandwiches on your own tonight." If I was struggling to understand a rapid-fire, meandering conversation among family members, I would speak up and tell them to slow down.”

The National MS Society (NMSS) has created an interactive resource, Keep S’myelin, designed especially for kids (5-12) and their parents to learn about MS in a fun and positive way. New issues are published quarterly. I was having fun the other day just browsing through the available issues online. Good stuff!!

Rest this post in its entirety:

Beginner's Guide to MS: The Impact of MS on Your Children

1 comment:

  1. There was nothing like this decades ago. Then again our daughter was only 18 months when Patti's first major exacerbation changed our world. As a result she has never known her Mom without MS or a wheelchair.

    Caregivingly Yours, Patrick