“It was shortly after that when I started talking very openly in front of my kids about having MS. It was on my mind a lot so I brought it up a lot. Instead of waiting for the questions, I integrated talk about MS into my conversation. It wasn't in a complaining way. Instead, I welcomed it into our household instead of holding it at bay. If I didn't feel like making dinner, I didn't think twice about saying "Looks like peanut butter and jelly sandwiches on your own tonight." If I was struggling to understand a rapid-fire, meandering conversation among family members, I would speak up and tell them to slow down.”
Rest this post in its entirety:
Beginner's Guide to MS: The Impact of MS on Your Children
1 comments:
There was nothing like this decades ago. Then again our daughter was only 18 months when Patti's first major exacerbation changed our world. As a result she has never known her Mom without MS or a wheelchair.
Caregivingly Yours, Patrick
http://caregivinglyyours.blogspot.com/
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