How do lifestyle, medication, and demographics affect people with multiple sclerosis? Answers to this question are the focus of international, internet-based research conducted by George Jelinek, M.D., and his team from the University of Melbourne, Australia.
In 2012, the research team collected baseline data for the Health Outcomes and Lifestyle Interventions in a Sample of people with Multiple Sclerosis (HOLISM) study. Participants from 57 countries were recruited through social media leveraging MS blogs, forums, Facebook, Twitter, international MS societies, and the primary researcher’s website, https://overcomingms.org. The HOLISM study provides a snapshot of current lifestyle and risk-modifying behaviors of a large international group of people with MS, as well as an ongoing platform for analyzing the association between these factors and disease progression.
Researchers have been analyzing the data collected in 2012 from approximately 3,000 people living with MS and publishing the results in individual articles. Those published to date are listed below. The original research plan includes a 5-year follow-up survey which would allow for comparison of longitudinal data. Updates on the status of that survey are unavailable. This latest article focuses on the associations of lifestyle, medication, and socio-demographic factors with disability in 2,469 people with any form of MS.
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Lifestyle Choices Associated With Less MS Disability and Fewer Relapses