Saturday, July 11, 2009

Support Creating a National MS Registry

Ask your Senators and Representative to co-sponsor the National MS and Parkinson's Disease Registries Act (H.R. 1362/S. 1273). The legislation, supported by our Congressional MS Caucus and the Bicameral Congressional Caucus on Parkinson's Disease, would for the first time establish a national coordinated system to collect and analyze data on multiple sclerosis, Parkinson's disease, and other neurological diseases and disorders.

Take Action Today! Click here send an e-mail to your legislators

The National MS and Parkinson's Disease Registries Act (H.R. 1362/S. 1273) calls for establishing separate, permanent, and coordinated MS and Parkinson's disease registries at the Agency for Toxic Substance and Disease Registry (ATSDR) at the Centers for Disease Control and Prevention (CDC) using an incremental, science-based approach. The last national study on incidence and prevalence rates on MS was conducted in 1975 - a lot has changed in 34 years. These registries will help determine incidence and prevalence rates and lay a foundation for better evaluating and understanding MS issues such as geographic clusters, variance in gender ratio, changes in health care practices, and changes in disease burden.

The MS and Parkinson's disease registries may help uncover and inform promising areas of research such as genetic and environmental risk factors and results could be used to provide consistency and coordination in addressing treatment of these and other neurological diseases.

(hattip I'm an MS Activist blog)

1 comment:

  1. Got it. (I think I already did this one.) Thanks for getting the word out.