Monday, May 30, 2011

Passion, Individuality, Perseverance: Byron Janis Discusses Performance and Living with Arthritis

“Music for me was indeed the closest thing to a feeling of God, an unspoken reverie to and from beyond.  To lose music to me was like losing my most intimate contact with Him.  “Believing” was not the issue, but if I could no longer play, what then?” - Byron Janis, Chopin and Beyond: My Extraordinary Life Through Music and the Paranormal (J.Wiley, 2010)
Last week I was fortunate to spend an afternoon with Byron Janis and Maria Cooper Janis while they were visiting Washington, DC.  We sat down and had a good, long chat about arthritis and perseverance which you should read at MyRACentral.

In the 2.5 hours I spent with the Janises, we talked about more than arthritis and Byron’s memoirs, which are included in the new book Chopin and Beyond which was coauthored by Maria Cooper Janis.  We talked about music, performance, and the passion which lies within each of us.

One of the last questions I asked Byron was related to his becoming a musician all his own.  I asked, ‘Having studied with Vladimir Horowitz at such a young age, how long do you think it took for you to solidly establish your own sense of style and uniqueness as a performer?’

Byron: “Very good question.  You know, Horowitz’s heart was in the right place.  He would say, ‘You don’t want to become a second Horowitz.  You want to be a first Janis.’  I’d say, yes, that’s true. But how do you do that?

It’s hard. You have to be strong, or strong-minded, and know that your mind is your mind.  And what helped me too was that I was never in awe of the person.  I played for Toscanini.  I wasn’t in awe of him, I was in awe of his extraordinary talent which was unbelievable.  So that helped me.

I grew up around Heifetz, Horowitz, and Toscanini.  I think that’s pretty good.  I had my own standards which were pretty high because of what I saw and heard.  But it did take me about five years [to become] what I really want and what I felt completely, and managed to discard that which wasn’t me or which was habit.”

I also asked, ‘How much time did you spend listening to other performers or recordings?’

Byron: “Well, not a lot.  Because again, Horowitz said something which was very good. ‘Why do people listen to recordings?  If you are going to listen to a recording, listen to TEN recordings of the same piece.  You will see that they are all different and yours has to be different.’  But yours has to be NOT different, as some try to be original [ed: or contrived] which is too bad.  But the hardest thing in the world is to be natural.

It’s the hardest thing in the world to play naturally.  You have something to say, which is your own.  And I always was frightened that Horowitz was, well he could be very mannered and whatever on stage.  I was always frightened that being natural was boring, you see.  Not at all, not when you have a talent.  If you are natural.”

When discussing teaching, Byron pointed out that “we can’t teach expression.  Sure we can teach fundamentals and technique, but we can’t teach someone how to feel.”  The following excerpt comes from an article, In Praise of Infidelity, which Byron Janis wrote for the Wall Street Journal in 2010.  I find the description of the creative process to be enlightening.
Thinking is creativity’s worst enemy.  When I sight-read a score, everything seems so right, so natural.  The notes seem to be playing themselves and the music flows.  Why?  Because I am not thinking.  Inspiration has been my guide—the adventure of the first time.  Then comes familiarization, the learning process where, until the piece is well in hand, thinking is allowed.  After that, interpretation—choices must be made, but you are finally free to feel and use your creative instincts.  And, at last, creation—how do I make the music sound as it did when I didn’t know it?  The great poet Yeats spoke of this dilemma so beautifully in his poem “Adam’s Curse”:
    Yet if it does not seem a moment’s thought,
    Our stitching and unstitching has been naught.
Before the heart can remember, the mind must forget.  And, when I least expect to, I will suddenly start playing that piece, again without thinking, as I did in the beginning when I first sight-read it.  That is when it happens—I have finally discovered my “moment’s thought.”
(Back to Thursday’s chat.)

Byron: “In talking to children, I talk to them as I would talk to an adult.  I think they perfectly understand, and they do.  Don’t they?  I mean they understand terribly well things that I was telling them.  They understood it very well.  I think they appreciate the fact that you talk to them as anybody else and not talk down to them.

And the other thing I always say is this.  Anybody who loses the child in him has a less interesting, pitiful life.  Because all the great artists I’ve known - I’ve known Picasso, painters, all kinds of people - they are children.  They grow up, mature, whatever.  But the child remains.”

Keeping the child inside of us alive is vital to living a victorious life.  Not something which I’ve thought too much about previously, but will from now on.

Janis had just came from Pittsburgh where he spoke to a group of children living with severe physical or learning disabilities at the children’s hospital.  He told the children, “There is a job for each one of us, no matter what our condition, just something we can do, that nobody else will do, as we do it.  I keep telling them, almost nothing is impossible.  You’re going to find something that you love and that you will be able to do.”

In a related story Byron continues: “Something that Chopin said, which was really fascinating and wonderful not only for pianists but for life.  ‘Don’t try to make your fingers equal in strength  Each one has it’s own job to do.’  And that’s so true. We’re not equal, really.  I wish we would all realize it.”

“What’s important, certainly with artists, is to keep our vulnerability.  Sure, you are going to get hurt.  In life, in love, in this and that.  But that’s life.  Sometimes I think we’re put here to learn how to handle adversity.  So many people, we all, have adversity.  How we handle it is key to what our life will be.  I really think that.  I learned how to handle adversity.  Moments were very difficult, I’ll repeat.  And I almost succumbed, but I didn’t.”
“It had not been the applause that kept me going, nor had it been the press when it was glowing.  It was my passion, my ability to never stop persevering, and the feeling of creating beauty that was necessary for my soul to exist.” - Byron Janis, Chopin and Beyond: My Extraordinary Life Through Music and the Paranormal (J. Wiley, 2010)
More information regarding Byron’s autobiography, the PBS documentary The Byron Janis Story, articles and public appearances is available at www.byronjanis.com.


Postscript: Any discussion of the paranormal seems to invoke strong reactions from those who believe and those who are skeptical.  I had fabulous discussions of what the term "paranormal" means to Byron and Maria Janis.

It's not just about bending spoons.  It's about the vast majority of the  universe which Einstein said we do not yet know nor understand.  It's about the power of the mind to overcome adversity.  It's about the unknown and discoveries yet to be made.  It's about science and research to find cures.  It's about synchronicity.  Honestly, the discussion we had could fill up an entire other interview.

Saturday, May 28, 2011

Mixed Emotions Surround an MS Diagnosis

In looking back at the various emotions I felt during the events surrounding my MS diagnosis, I was mildly surprised at what surfaced within my memory.

clueless-ness, terror, relief, anxiety, hope, dispair, acceptance

Read this post in its entirety:
Emotions Before, During, and After a Diagnosis of Multiple Sclerosis

Thursday, May 26, 2011

Missing Supper

Very unusual when a cat misses a meal. In fact, food is typically the first thing on a kitty cat's mind as soon as the sun comes up. Shortly after that thought occurs, the same kitty cat likes to walk all over his kitty mama.

Pippin likes to take the tap-tap-tap and stomp-stomp-stomp approach to waking up a beloved human.  If that doesn't work, he moves onto making noises with the piles of plastic bags and/or paper on the floor next to my bed.  He knows that he has to be loud to wake me up.

I joke that if Pippin's attempt doesn't work, he sends in the heavy hitter (ie. his sister, Musette).  She takes the walk-walk, meow-meow, jump-from-the-nightstand-onto-mommy's-chest and repeat approach.  Admittedly the pouncing is rather effective.

Pippin
As you may recall, I teach music lessons from my home studio.  On teaching days, I take a supper break during which my three cats are fed their dinner which is typically one can of food split three ways.  Monday evening, Pippin didn't show up for supper.  I thought that was very odd, but figured that may he had eaten a good snack in the afternoon (a little bit of dry food) and was sound asleep.  I tried calling for him but he didn't come.  Very soon, I needed to go back to teaching and I put Pippin's dinner in the refrigerator so that his brother and sister would not help themselves.

After I was done teaching, I still didn't see Pippin.  I called and called.  I looked in all the typical hiding places.  I call Rob to ask if there are any additional 'secret' hiding places that I hadn't discovered yet.  I take the flashlight and look under all the beds in the house.  I look in the corners of the closets.  I look behind the furniture.  I ask Rob, "are you absolutely sure that Pippin didn't slip out this morning?"

To be honest, I was starting to panic.  I even went outside with a container of dry cat food to shake as accompaniment to my calls.  Instead of discovering Pippin, I did discover a rabbit in the front yard. This little guy stayed around for quite some time.


OK, I'm starting to panic.  Where in the world was Pippin?  Keep in mind that I really didn't think that Pippin was outside as he gets scared if you even carry him too close to the front door, much less try to get outside.  I go back downstairs, with the flashlight this time.  I look in the laundry room.  I look under the stairs behind the containers of Christmas decorations.  I am basically at a loss and not very happy at the moment.

Then as I'm walking through the 'playroom' in the studio, I catch the glint of two copper eyes between a small opening in a sliding louvre door which leads to my small file room and the electrical panel to the house.  I had closed that door early in the day, but not quite all the way, leaving about a 3-inch gap.

Apparently Pippin was in the dark room when I pulled the door closed.  Lifted and slid it sideways, really, as the top rail has come loose from the door frame.  This is one reason why I hadn't tried hard enough to get it all the way closed.

Why didn't Pippin answer my calls as I tried to rouse him for dinner and then was frantically looking for him?  Well, because Pippin doesn't have a very loud voice at all.  In fact, he has the softest, highest pitched meow that I've ever heard.  You would laugh if you heard it.  Also, his "purr" makes no noise.  Something about Pippin's voice box is not quite normal for a cat.  He probably was trying to call me and I didn't hear him.

The poor guy not only didn't get a 'snack' during the middle of the day, he missed supper.  He was shut up in a dark closet where even he probably couldn't see his own black paw in front of his face if he weren't sitting in the slender opening of the door.  Why he didn't scratch at the door as I walked past, I'm not sure.

This little guy still has no idea that he can't be seen under many different circumstances.  He is very trusting of his tall human companions who sometimes walk through dark hallways in the middle of the night.  I've walked into him once before and we both yelped. 

Next time I'm in the file closet and go to close the door, I must remember to look in the dark corners for Pippin.  But at least now, I know another of his 'secret' hiding places and Pippin is unlikely to miss any more meals any time soon.

Wednesday, May 25, 2011

Importance of Balance between Strength and Flexibility

Last week I attended a presentation at which my physical therapist discussed the importance of maintaining balance between muscle groups.

It was a great reminder of how to begin wisely in any PT program, starting with creating balance between muscle groups.  Imbalance can be caused by many things, including spasticity and disuse which are common in multiple sclerosis.  It makes sense that stronger muscles which get used more may be the ones which become shortened and stiff.  One must be methodical in his/her approach to stretch and strengthen muscle pairs (eg. calves/shins, thighs/hamstrings, abducters/adducters, biceps/triceps, pectoral and back muscles, etc).  I needed this reminder.

I also needed the reminder that in physical therapy, it is important to focus on flexibility, strength training, and aerobic exercise.  To achieve cardiovascular benefits, it is recommended that you exercise 3-5 times per week.  To attain muscular fitness benefits, it is recommended that you train two days per week.

Regarding motivation….“Only one-third of those who begin an exercise program are still exercising by the end of the first year.”  Here are some tips to help you stay motivated if you are working on your own to improve strength and flexibility:
  • Start an Exercise Log or Journal to chart your progress and provide motivation.
  • Find a fitness partner.
  • Schedule your workouts.
  • Make exercise non-negotiable.
What do you recommend to stay motivated when your physical well-being is at stake?


Read this post in its entirety:
Staying Motivated Beyond Physical Therapy

Tuesday, May 24, 2011

World MS Day, May 25, 2011 - Keeping MS Patients at Work


Multiple Sclerosis is a neurological disease that affects people differently. Many people with MS are able to work for years after diagnosis. But many have to give up work, when greater understanding of the disease would enable them to stay.

Read more: Work and Multiple Sclerosis: A Guide for Employers and Employees (pdf)

Accessibility at the workplace and Flexible working hours



Maximizing efficiency and minimizing physical challenges


Taking breaks at work, no janitor's closets please



More materials and resources are available on MSIF's World MS Day website, including Making Change Happen: An MSIF Guide to Advocacy (pdf).


Help Spread Awareness tomorrow for World MS Day 2011.   Go to worldmsday.org for more information and to Sign the Petition to encourage employers and policy makers to remove the obstacles preventing people with MS from getting, or staying in work.

Monday, May 23, 2011

Please Welcome New MS Blogs and Bloggers

General Static - Daphne

Dancing with Multiple Sclerosis - Taylor

You Aren't a Mess, You Just have MS - Katie

M.S. Inspirations - group blog

Gilenya and Me - TickledPink
(you may remember TickledPink as blogging at Fingolimod and Me)

Gracie's Mum - A Story of a Mum with MS - Angela

mylifeonMarS - Ricardo

The Greek from Detroit

Of All the Nerve - Lorna
A Life Despite Multiple Sclerosis
(Lorna's blog isn't new, but at some point she moved it.  This is it's new home.)

If you have a blog which you would like included, please send me a quick email.