tag:blogger.com,1999:blog-3500936220214961312.post7010115928564712074..comments2023-10-02T04:06:53.185-04:00Comments on Brass and Ivory: Life with MS and RA: Carnival of MS Bloggers #67Lisa Emrichhttp://www.blogger.com/profile/10862232056342347990noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-3500936220214961312.post-83219638538865965492010-07-17T16:08:23.675-04:002010-07-17T16:08:23.675-04:00Hi Lisa,
what a delight to see "Why Me,"...Hi Lisa,<br />what a delight to see "Why Me," by WK. I think that post turned me around while I was reeling about my husband leaving.<br /><br />Well, <b><i>starting to reel,</i></b><br />I don't expect to snap out of anything anymore (ha ha, MS). And Wheelchair wasn't talking about lovelorn sob-sisters, but his rationale of life's idea of "fair," helped me clear my head quite a bit.<br /><br />Not to mention, whoTF knows if I would ever be able to find the original post again on my own?<br /><br />thanks,<br />Lorraineimascatterbrainhttps://www.blogger.com/profile/05108802068446089855noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-45724879352494281332010-07-15T20:05:10.931-04:002010-07-15T20:05:10.931-04:00Lisa, I am always flattered when you include my po...Lisa, I am always flattered when you include my poems in your Carnival of MS Bloggers, but this time I am simply blown away by whose company my poems keep. Dr. Rob's post is a an eye opener and well worth rereading often. As for Marc on Wheelchair Kamikaze, I keep telling him he is brilliant, though by now he may be tired of hearing it from me. The thing is, he is brilliant. This post and the one "When You Are Afraid ..." are my favorites of his. <br />Thank you, Lisa, for the amazing service you provide us. We MSers are deeply in your debt.<br />JudyJudyhttps://www.blogger.com/profile/07141627284221873201noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-76602881335730350322010-07-15T14:29:52.747-04:002010-07-15T14:29:52.747-04:00Continuity and the long-term relationship are so v...Continuity and the long-term relationship are so very important when a patient has one or more chronic illnesses. I am thankful to be fortunate to have put together a great team, who actually communicate with each other, to help guide my care. <br /><br />Primary, neuro, rheumy, one ER dept (if ever needed). Keep things simple when the possibilities are complicated.<br /><br />I did have my own ER visit a few weeks ago. It was between Rituximab infusions and I had only one concern...the possibility of a blood infection which would prevent my getting the 2nd infusion. <br /><br />My primary symptom was extreme pain upon touch (the space of which was expanding) on my forearm (tiny bit of heat, no redness). This was not the arm which received the 1st infusion, but is an arm which has been perpetually numb for years now. I had also tripped and bruised myself up pretty significantly in the week previous.<br /><br />The ER doc was thorough. Blood tests and blood cultures done - fine. Look for blood clot - fine. Look for possible hairline fracture - nope. <br /><br />I offered that it could 'possibly' be the sensation of nerves coming back to life. They way the pain was spreading away from my spine made sense for this explanation. Something to talk to my neuro about during our next visit.<br /><br />Fortunately, I got my 2nd Rituxan infusion on schedule. But now (6 weeks later) I am still showing some phlembitis on the vein which got infused. Sigh.<br /><br />Nothing is easy. I appreciate so much what doctors do. I respect the ones who admit to the "I don't knows" but who do not shy away from the long-term, complicated cases. We need more of you!!<br /><br />Thank you, Dr. Rob, for writing this fantastic post!!Lisa Emrichhttps://www.blogger.com/profile/10862232056342347990noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-25217085863031506682010-07-15T13:44:18.529-04:002010-07-15T13:44:18.529-04:00Thanks for putting that up. It was actually an MS...Thanks for putting that up. It was actually an MS patient who was put off by a bad ER experience that made me write this post. I told her that she scared doctors, and since I had been her doc for 12 years, she didn't take it personally.Dr. Robhttps://www.blogger.com/profile/01871792467587364512noreply@blogger.com