tag:blogger.com,1999:blog-3500936220214961312.post5418276294260832591..comments2023-10-02T04:06:53.185-04:00Comments on Brass and Ivory: Life with MS and RA: My RA and MS Diagnoses: The Autoimmune Diseases JackpotLisa Emrichhttp://www.blogger.com/profile/10862232056342347990noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-3500936220214961312.post-8521153479864007952009-09-18T21:42:54.034-04:002009-09-18T21:42:54.034-04:00Very interesting work here as I too have MS, blog...Very interesting work here as I too have MS, blog as well as a rock musician in my spare time (more like when I can walk onstage;) <br /><br />While my blog centers around conservative issues, I often discuss the disease and it's impact on me and my politics...I added myself to your tribe and enjoyed your post ;>)Rayhttps://www.blogger.com/profile/10430262996916238225noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-55200211075978413292009-06-02T14:47:02.568-04:002009-06-02T14:47:02.568-04:00Andy, I hear ya.
Anne, funny. I really can't tak...Andy, I hear ya.<br /><br />Anne, funny. I really can't take Prednisone but Decadron agrees with my body. So that's the oral steroid I take if I need one.<br /><br />Linda, ABSOLUTELY I played the concert. One of my first concerns was, "can I have some ice, please? and an aspirin?" Believe it or not, these items were difficult to locate backstage.<br /><br />I'd like to think that I was a trouper. In fact, it took a week and 2 trips to the campus healthcenter to determine that I really did have a hairline fracture.<br /><br />Of course, the symphony management was concerned with WHERE I was when I fell. Was it city property or symphony hall property? <br /><br />A rock star I was. :)Lisa Emrichhttps://www.blogger.com/profile/10862232056342347990noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-27039408269353483182009-06-01T04:14:08.276-04:002009-06-01T04:14:08.276-04:00What I want to know is if you went on to PLAY at t...What I want to know is if you went on to PLAY at the concert?? Somehow, I rather bet you did! Is it uncool to say you "popped up like a rock star" when playing in a symphony? LOLBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-45556462525564305062009-05-27T10:45:05.861-04:002009-05-27T10:45:05.861-04:00I'm a member of the club that has MS and RA and an...I'm a member of the club that has MS and RA and another club that has Crohn's Disease.<br /><br />All three diseases are treated with steroids, in varying strengths and usually at different times, but sometimes at the same time.<br /><br />This week, RA is the prominent disease and the doc wants to wean me off the prednisone and get started back on Decadron because it seems that I was doing better on that drug.<br /><br />Decadron is still a steroid but a bit more powerful than prednisone or methotrexate. <br /><br />I choose to stay on prednisone because it is the lesser of all the evils.<br /><br />One more doctor I am trying to convince that I DO NOT want to change drugs again and to please leave my drug regimen alone and just help me over the humps. <br /><br />So the prednisone is again increased to be followed by a taper to get back to maintenance dose. I had IVSM in December and don't want it again unless I absolutely have to have it. RA stuff is pain, stiffness, fingers/toes cramps/spasms and swelling.<br /><br />For me Crohn's came at age 12, then came MS at 23, then the RA at 33 - every ten years. Ages 43 and 53 came and went with no new diseases - so the 10 year curse has been broken. LOLAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-2564557760933449322009-05-27T01:54:11.562-04:002009-05-27T01:54:11.562-04:00Luckily, both RA and MS respond great to low dose ...Luckily, both RA and MS respond great to low dose naltrexone therapy (like most autoimmune diseases do).M.https://www.blogger.com/profile/17982894362182079013noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-7406259068524300052009-05-26T23:58:14.817-04:002009-05-26T23:58:14.817-04:00I'm with you on this one! The numbness in my arms...I'm with you on this one! The numbness in my arms was probably an old football injury, and a family history of vision issues meant it was my turn. Good luck figuring yours out,<br /><br />Andyawbhttps://www.blogger.com/profile/05029157758859447422noreply@blogger.com