tag:blogger.com,1999:blog-3500936220214961312.post2524056272760181732..comments2023-10-02T04:06:53.185-04:00Comments on Brass and Ivory: Life with MS and RA: Carnival of MS Bloggers #28 - Internet Forum EditionLisa Emrichhttp://www.blogger.com/profile/10862232056342347990noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-3500936220214961312.post-24218147259682021242009-02-01T12:04:00.000-05:002009-02-01T12:04:00.000-05:00I browsed message boards a while back but I just g...I browsed message boards a while back but I just got inundated with too much information. People's own opinions. Very subjective and a bit of an overload. I like to turn to credible websites--- MS Society's, Web MD, Mayo Clinic, CDC, and so on--- for straight facts and blogs for personal stories and experiences, but I think message boards and forums can mix the objective with the subjective WAY TOO MUCH. But that's just me..hehehe!Jenhttps://www.blogger.com/profile/17421022098477662697noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-12739148087075291842009-02-01T03:44:00.000-05:002009-02-01T03:44:00.000-05:00I tend to stay a distance from 'forums' because I ...I tend to stay a distance from 'forums' because I like the sound of my own narcissistic voice too much. LOL I know they are a helpful place for the right time for people...I just prefer to bury myself reading old blog posts of my favorite bloggers and continue to stay insulated in my own, little world...which is a quite lovely world, I might add...I DO come here after all.<BR/><BR/>Linda D. in SeattleBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-9758633181283094422009-01-31T23:38:00.000-05:002009-01-31T23:38:00.000-05:00Hey Lisa - thanks for the topic, it makes for some...Hey Lisa - thanks for the topic, it makes for some thought provoking reading.<BR/><BR/>Maybe chatsites and blogs et al are the 21C equivalent of London's Speaker's Corner where arming oneself with a suitable size grain of salt (like Webster mentioned) was also always a good idea?Che koalahttps://www.blogger.com/profile/09224701833663123033noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-355210807212122009-01-30T20:06:00.000-05:002009-01-30T20:06:00.000-05:00The only "forum" I like is Joan's biweekly chatroo...The only "forum" I like is Joan's biweekly chatroom. I stay off the other sites.Denver Refashionistahttps://www.blogger.com/profile/17681030016057155728noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-83832237419100454762009-01-30T06:54:00.000-05:002009-01-30T06:54:00.000-05:00Gee, I was quoted on the Carnival. I have arrived!...Gee, I was quoted on the Carnival. I have arrived!!!(a little mirth there)<BR/><BR/>Lisa, with regard to the MS bloggery, I take EVERYTHING with a grain of salt, and some things are more salty than others. I rate your blog "heart healthy," BTW.<BR/><BR/>Since you're the researcher extraordinaire, how would you like to compile a list of MS fora for the rest of us who are too lazy to do it (ahem).<BR/>In your free time, of course. :-)Websterhttps://www.blogger.com/profile/13518858062969978457noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-28467765943320834152009-01-29T23:11:00.000-05:002009-01-29T23:11:00.000-05:00Carole and Lisa, I agree that it can be helpful wh...Carole and Lisa, I agree that it can be helpful when other discussion participants actually have had the same experience and know what one means. On the other hand, the fakers, who sometimes can really take over discussions, just drive me nuts--and I haven't been on a discussion board yet that did not have MS fakers. No amount of fake empathy does it for me.<BR/><BR/>But, you can tell from my contribution here that, after participating in a few a these forums, I have a negative view of them. I decided to set up a yahoo group, with a limited membership, so I could avoid the fakers, the nuts and abusers that frequent these forums. Also, I found some research that showed that discusson groups are most effective when they are homogeneous (i.e., are limited to persons with just one disease). That research convinced me to just set up a group with others I know have MS and to include only nice people. Anyway, the use of yahoo groups is free,<BR/><BR/>Lisa, I thought you did a great job of putting together a group of opinions here. I think it is very helpful to share information on experiences with MS discussion forums.<BR/><BR/>I hope a lot of MSers read today's post. I think it will help a lot of folks understand they are not alone in having bad experiences with these discussion boards.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-47454410397283155912009-01-29T21:49:00.000-05:002009-01-29T21:49:00.000-05:00Hi Carole (I was just leaving at comment at your p...Hi Carole (I was just leaving at comment at your place, hehe)<BR/><BR/>I AGREE!! Bloggers tell it like it is which is very helpful in getting grasp on the 'real' life of MSers.<BR/><BR/>In one forum which I was thinking of in putting these posts together has an interesting phenomenon going on. There have been several folks who became VERY active on the forum (exclusively MS) thinking that they MUST have MS. <BR/><BR/>Then when the testing was finally complete and it had been determined that they in deed did not have MS, they decided to stick around. So at what point does having non-MSers participating dilute the unique type of understanding and advice which only MSers can give to each other?<BR/><BR/>Just something I ponder, but with the blogs there's much less ambiguity which I like.Lisa Emrichhttps://www.blogger.com/profile/10862232056342347990noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-20505226977462910222009-01-29T21:40:00.000-05:002009-01-29T21:40:00.000-05:00Hi! Lisa As for researching on the web, sure you h...Hi! Lisa <BR/>As for researching on the web, sure you have to be careful to not go overboard, however going online and checking out blogs has been a tremendous help for me. Rather than escalate my concerns,it calmed them.<BR/><BR/>I had no clue what MS was when they suspected I might have it. My first neuro was a jerk. The MS society was OK but they sugar coated everything. Reading websites and blogs,I could take my time,take it all in. Reading about the various symptoms I can at least be prepared for what might come, Bonus if it doesn't .<BR/><BR/>It's also such a relief to not have to explain myself to other MS'ers .<BR/>When I say I'm tired they know what I'm talking about and it's great to know the majority think "yeah Ms sucks"Taxingwomanhttps://www.blogger.com/profile/05564125285937262315noreply@blogger.com