tag:blogger.com,1999:blog-3500936220214961312.post12136510610746516..comments2023-10-02T04:06:53.185-04:00Comments on Brass and Ivory: Life with MS and RA: Surfing the Magnetic TubeLisa Emrichhttp://www.blogger.com/profile/10862232056342347990noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-3500936220214961312.post-29009691508924411782008-04-14T12:20:00.000-04:002008-04-14T12:20:00.000-04:00I've pretty much called it quits for now on the MR...I've pretty much called it quits for now on the MRI's. I feel great so who cares what it says...Miss Chrishttps://www.blogger.com/profile/11731458343222525114noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-58020514323189915842008-04-13T17:50:00.000-04:002008-04-13T17:50:00.000-04:00The usual MRI machine I go in has no radio. Just a...The usual MRI machine I go in has no radio. Just a mirror....and like you, Lisa, I can't see without my glasses. but the MRI machine I was in at the children's hospital last summer (for a study-used during off hours)had a DVD player hooked up. the first thing they asked me was what movie did I want to see? I watched Wallace and Grommit - the wererabbit one and tried not to laugh as that would move my head and body.<BR/><BR/>In 10 years I think I've had as many MRIs. Never bothered me.<BR/><BR/>Good Luck!!<BR/><BR/>S.Anonymoushttps://www.blogger.com/profile/08793047835261862513noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-32178587437669564362008-04-13T17:42:00.000-04:002008-04-13T17:42:00.000-04:00I don't really mind having the MRIs done. I prop ...I don't really mind having the MRIs done. I prop my knees on a wedge to make it more comfortable (but then again I haven't had any previous back surgeries.)<BR/><BR/>The machine does have that little mirror, but it doesn't make much difference to me. Without my glasses or contacts, I can only makeout the life-lines on my palm if I bring my hand to about 3 inches from my face. So the mirror is useless.Lisa Emrichhttps://www.blogger.com/profile/10862232056342347990noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-76599499605778455952008-04-13T15:22:00.000-04:002008-04-13T15:22:00.000-04:00Hi! Lisa I was just curious: Does the machine your...Hi! Lisa <BR/><BR/>I was just curious: Does the machine your hospital uses have a mirror inside so you can see the technician? Music ? <BR/><BR/>My first MRI had those things and I found it way easier to deal with. Then my second one was at a different hospital and it was awful,like a white coffin .I had a panic attack, but I was determined to get through it, mainly because my son was in the waiting room and I didn't want him to think I was a wimp. <BR/>Good Luck !Taxingwomanhttps://www.blogger.com/profile/05564125285937262315noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-28488815388979699082008-04-13T15:16:00.000-04:002008-04-13T15:16:00.000-04:00I both giggled and frowned when I read about your ...I both giggled and frowned when I read about your strong thighs and feeling weak, tired, etc. My legs give me a lot of trouble actually, so I am right there with ya. I understand too, why they want to have a peek at your brain, as it can provide useful information when used in context with clinical findings and symptoms. I hope your legs get back to to "normal" as soon as they can. I will keep you in my thoughts.<BR/><BR/>I personally I dread the MRI's myself, preferring to not have them if I do not HAVE to. I find them painful to get through, laying down that long is hard on my back. (I have had 2 back surgeries.)<BR/>My former Neurologist Dr Kachuck from USCs MS Center recently explained to me in an email:<BR/><BR/>"MRI is our gold standard for lesions that can be visualized non-invasively, but it certainly is not anywhere near to even good at it. You can have problems and never see the lesion on the conventional MRI accessions."<BR/><BR/>Well said. It is absolutely true and baffling!<BR/><BR/>Peace,<BR/>AmmeyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-7334414688492866822008-04-13T13:44:00.000-04:002008-04-13T13:44:00.000-04:00No! Not the dreaded disease progression talk...le...No! Not the dreaded disease progression talk...let's hope instead, it's the "Wow, you look fabulously wonderful" talk. But then again, when have ANY of us ever had that talk with our doctors???<BR/><BR/>Here's hoping what you search for, you find...<BR/><BR/><BR/>Linda D. in SeattleBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-79824202300485012122008-04-13T12:53:00.000-04:002008-04-13T12:53:00.000-04:00My neurologist says the same thing. The MRI image...My neurologist says the same thing. The MRI image can change from day to day and symptoms do not necessarily correlate to new lesions and vice versa.<BR/><BR/>He only considers using MRIs (after diagnosis) when something significant occurs. I think perhaps to determine if the DMDs are being effective and to see how much damage might be occuring. For me, the last MRI series I had 15 months ago was about 1.5 years after diagnosis and just to have a point of reference for any changes. At that time, there were no new symptoms and things were going pretty well.<BR/><BR/>This time it is because stuff is going on. And I think the fact that the MRI center now has a more powerful machine which was not available previously. The images are supposed to be of highly quality and more detailed. I'm curious to see if things are any different, knowing that lesions come and go.Lisa Emrichhttps://www.blogger.com/profile/10862232056342347990noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-7110239366566993552008-04-13T12:40:00.000-04:002008-04-13T12:40:00.000-04:00I'm always surprised to read on blogs how OFTEN pe...I'm always surprised to read on blogs how OFTEN people have MRIs these days...I really don't get it.<BR/>The pictures will be constantly changing...something...must ponder this.Diane J Standifordhttps://www.blogger.com/profile/11862850657925658079noreply@blogger.com