tag:blogger.com,1999:blog-3500936220214961312.post8352293075789977761..comments2023-10-02T04:06:53.185-04:00Comments on Brass and Ivory: Life with MS and RA: Updated PML cases: 79 Tysabri patients diagnosed with PML, 16 have diedLisa Emrichhttp://www.blogger.com/profile/10862232056342347990noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-3500936220214961312.post-18427252113480125632010-12-21T10:57:32.059-05:002010-12-21T10:57:32.059-05:00The controversy about Tysabri reminds me of the Me...The controversy about Tysabri reminds me of the Mercury treatments my aunt received almost fifty years ago. Each treatment seemed to stabilize her MS and symptoms seemed to diminuish, but the treatments lead to her very early death.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-33475635076321581382010-12-20T10:58:35.209-05:002010-12-20T10:58:35.209-05:00I have been following the statistics as well, and ...I have been following the statistics as well, and am a bit disturbed that death number is increasing. With that said, I know many who are on Tysabri and have seen amazing results. I think this is a good example of the need for MS patients to better educate themselves on the facts, not just for Tysabri but any drugs we take, so we can make an informed decision.Mishttps://www.blogger.com/profile/18307366150527690373noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-90776877378742707962010-12-19T15:18:10.328-05:002010-12-19T15:18:10.328-05:00I am happy they are testing for PML? It seems to ...I am happy they are testing for PML? It seems to have hope for some?Kim@stuffcould....https://www.blogger.com/profile/03566751822418137457noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-3931045650550457592010-12-19T15:09:59.863-05:002010-12-19T15:09:59.863-05:00And I'm due for my 13th infusion. I just had t...And I'm due for my 13th infusion. I just had the blood drawn to check for JC virus....hoping its negative.Laurahttps://www.blogger.com/profile/15349928247626849914noreply@blogger.com