tag:blogger.com,1999:blog-3500936220214961312.post6523462199639930796..comments2023-10-02T04:06:53.185-04:00Comments on Brass and Ivory: Life with MS and RA: Heat Sensitivity and Uhthoff's PhenomenonLisa Emrichhttp://www.blogger.com/profile/10862232056342347990noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-3500936220214961312.post-80728401909511941952011-04-14T13:36:37.061-04:002011-04-14T13:36:37.061-04:00Actually I think I have inverse Uhthoff's synd...Actually I think I have inverse Uhthoff's syndrome. I feel better when it is warm. Maybe not extremely hot. But better hot than cold. I enjoy our hot tub. If I get cold I can have symptoms of flare ups of some of the other symptoms - my sock feet for example. I will have to ask my neuro if I think of it. I know early on he asked about whether hot baths etc bothered me, and when my answer was no, and that I enjoy soaking in a hot tub and that it seems to help, he didn't say anymore other than to say it was sometimes a sign of MS. Regardless I was still diagnosed with MS.MS Day Dreamerhttps://www.blogger.com/profile/16323233788366076180noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-53550257050338633472011-04-03T19:16:05.459-04:002011-04-03T19:16:05.459-04:00I originally presented with Uhthoff's sign and...I originally presented with Uhthoff's sign and optic neuritis. Heat always worsens things for me. I can walk a little farther in cold weather than I can when it's warm. But no matter the weather I will begin to limp and become increasingly off my balance the further I go past 2 blocks. I've had to change my workouts to be made with equipment that supports my clumsy self.~Octhttps://www.blogger.com/profile/04424560774343634505noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-34158901989681804492011-04-03T15:38:15.870-04:002011-04-03T15:38:15.870-04:00My vision goes, my legs get weak, I get all floppy...My vision goes, my legs get weak, I get all floppy, I can't think straight, I get dizzy, and I feel like I am going to vomit. I really dislike the heat!Karenhttps://www.blogger.com/profile/01051732856820479687noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-38698557957279535012011-04-03T15:10:45.705-04:002011-04-03T15:10:45.705-04:00Living here in the South the toughest part of havi...Living here in the South the toughest part of having MS is in the summer between the front door and the car...I now have a "wardrobe" of the cooling neck scarves which help!YankeeQuilterhttps://www.blogger.com/profile/03324287185970922332noreply@blogger.com