tag:blogger.com,1999:blog-3500936220214961312.post6110369511457200583..comments2023-10-02T04:06:53.185-04:00Comments on Brass and Ivory: Life with MS and RA: Pharma Wants You to Walk Faster and Easier for $10,000Lisa Emrichhttp://www.blogger.com/profile/10862232056342347990noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-3500936220214961312.post-69885307192006933812008-09-25T08:43:00.000-04:002008-09-25T08:43:00.000-04:00Thank you so much for doing the research on Fampri...Thank you so much for doing the research on Fampridine and sharing your results. I was considering this drug but had some reservations; this has helped by providing more info; I don't think this drug is the way I want to go.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-87025549776513481642008-07-11T17:20:00.000-04:002008-07-11T17:20:00.000-04:00Lisa, as always - Thank you so much for doing the ...Lisa, as always - Thank you so much for doing the research you do. As I was reading your post today, a weird thought came to my mind - kinda unrealated, but kinda not. <BR/><BR/>I just wonder.. How many of the scientists out there who's job is centered around finding a cure for MS... how many of them actually have MS..<BR/><BR/>just made me think, because if they understood the whole picture, I mean really understood.. I wonder if things would be a bit different.. I just wonder if things would be more personal driven than money driven...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-22856404365947448212008-07-11T12:57:00.000-04:002008-07-11T12:57:00.000-04:00Thanks for all the info! I'm in shock at the cost...Thanks for all the info! I'm in shock at the cost of your treatments - your insurance doesn't cover much do they? WOW<BR/><BR/>I am so thankfully that hubby's MS treatments are all covered, including Tysabri every 4 weeks with a $20 co-pay only. If it wasn't covered he couldn't have it. Bottom Line. :(Triciahttps://www.blogger.com/profile/11399022634436650094noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-5123994344739759742008-07-11T01:03:00.000-04:002008-07-11T01:03:00.000-04:00GIMME A BREAK. 1. by 2010 there will a bunch of be...GIMME A BREAK. 1. by 2010 there will a bunch of better (so we will be told) drugs. 2. I did many 25ft walking speed tests while on no drugs,5-10 years post DX and sometimes I improved. THAT is the reality of MS. Certain days, certain times, ANYONE can be more mobile. 3. When I read "...statistically significant" RED FLAG---that implies to me an effect so small that side efects will "statistically" be significantly MORE than I have NOW. (none) 4. I KNOW how I ended up stuck in a chair...I read much about MS research in 1990 right after my DX, and what I saw was that a fall starts a downward trend toward a whhel chair. Even now, if I had a DEVICE that could keep me from falling as I take steps, I would be walking on my own in a year. Had such a DEVICE had been available when I first fell in 2004, 14yrs after DX, I would NEVER own a wheel chair. Fear of falling, having no one to help me up, except medics who are capable of injuring me more than the fall did, or deaf old man neighbors who I can't communicate my needs to, burdening loved ones, THIS all put me in a state of disability that a DEVICE would have prevented. MIT students, maybe could set aside some time to design such a device, along with the mini global-friendly car they have made. But, what ON EARTH would the drug companies do? <BR/>Good job, Lisa. ThxDiane J Standifordhttps://www.blogger.com/profile/11862850657925658079noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-87095954274185999302008-07-11T00:15:00.000-04:002008-07-11T00:15:00.000-04:00Way to dig, Lisa!You read between the lines and do...Way to dig, Lisa!<BR/><BR/>You read between the lines and don't follow the mooooooooooo gates.<BR/><BR/>We haven't heard much of this drug yet in Canada -- although if Tysabri isn't covered here, and the DMD's are covered only in some places, then this new one won't likely be available to everyday MS-ers for a long while.<BR/><BR/>And I'm not too worried about that...Nervus Rexhttps://www.blogger.com/profile/06579761611141837016noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-18938338457217544582008-07-10T15:11:00.000-04:002008-07-10T15:11:00.000-04:00Thanks. You are doing the important research so w...Thanks. You are doing the important research so we don't have to. I also have my doubts about this drug. I am sure that at the moment it is not for me.Denver Refashionistahttps://www.blogger.com/profile/17681030016057155728noreply@blogger.com