tag:blogger.com,1999:blog-3500936220214961312.post5068231853949095697..comments2023-10-02T04:06:53.185-04:00Comments on Brass and Ivory: Life with MS and RA: Carnival of MS Bloggers #105Lisa Emrichhttp://www.blogger.com/profile/10862232056342347990noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-3500936220214961312.post-30672735235244229942012-01-15T20:54:26.448-05:002012-01-15T20:54:26.448-05:00A beautiful collection of posts Lisa...we are a co...A beautiful collection of posts Lisa...we are a courageous bunch of folks, day by day by day.Laurahttps://www.blogger.com/profile/15349928247626849914noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-88949462286196473292012-01-07T01:10:30.185-05:002012-01-07T01:10:30.185-05:00Yes great posts, thanks. Have included you in my n...Yes great posts, thanks. Have included you in my new blog called Health Zoo under 'Support' as I feel that is what your site provides http://healthzoo.blogspot.com/Lee Goodhttps://www.blogger.com/profile/05911261310514786271noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-15689128924728780232012-01-06T17:40:20.953-05:002012-01-06T17:40:20.953-05:00I love reading the posts of others, we all have su...I love reading the posts of others, we all have such similar struggles, and it is great to hear another's point of view.<br />Thank you for putting this together!<br />xxDaniellaDaniellahttps://www.blogger.com/profile/16464704755878016957noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-7048126708893308182012-01-05T19:34:52.972-05:002012-01-05T19:34:52.972-05:00These words really hit home for my husband and I. ...These words really hit home for my husband and I. He was diagnosed with primary progressive (now secondary...maybe progressive relapsing...who knows lol) in January 2005. Your story reminded me of a favorite quote of mine "You never know how strong you are until being strong is the only choice you have." MS is a horrible disease, but the people living with it are a testiment to what we all should strive to be. The things I have watched my husband conquer would amaze anyone. He is the strongest, most resilient person I have ever known. <br />If you could pass a suggestion to your friend with terrible spasticity for us.... Alex had an Intrathecal Baclofen Pump implanted. It was a serious procedure, but the benefits have changed his life. If you suffer from sever pain :( you can even have them mix pain meds with the baclofen. The medicine is delivered directly to your central nervous system so it works better and your body doesn't have to filter so much out of your blood! You get to avoid yet another thing to make you tired (baclofen) and save your kidneys and liver....long term solutions!! Drastic situations call for drastic measures, right? The maintenance is also amazingly easy!! Only refilled every 5 months or so. Just something else to consider right ;) Only share because of the great results Alex has had and we know what taking oral baclofen is like. Hope it helps or at least gives him an option to keep in his back pocket. He of course still struggles with everything else that is MS and uses a powerchair but the spasticity and pain have improved. Thanks for sharing!! Hatchhttps://www.blogger.com/profile/08264586294602985476noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-41880664115817395522012-01-05T15:06:58.622-05:002012-01-05T15:06:58.622-05:00Great group of posts. There is ample opportunity t...Great group of posts. There is ample opportunity to focus on Strength, Hope, and Forgiveness in this journey.<br />JudyJudyhttps://www.blogger.com/profile/07141627284221873201noreply@blogger.com