tag:blogger.com,1999:blog-3500936220214961312.post2652266657844535705..comments2023-10-02T04:06:53.185-04:00Comments on Brass and Ivory: Life with MS and RA: Carnival of MS Bloggers #92Lisa Emrichhttp://www.blogger.com/profile/10862232056342347990noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-3500936220214961312.post-24792706389888174752011-07-25T12:14:26.144-04:002011-07-25T12:14:26.144-04:00Lisa, I have been flabbergasted by the response to...Lisa, I have been flabbergasted by the response to this post. It was also an Editor's Pick on Open Salon.com. I guess it has just really struck a chord with people. I am so glad if it has helped anyone at all.Mariehttps://www.blogger.com/profile/10106720865034468249noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-31088467406662270922011-07-25T10:01:50.522-04:002011-07-25T10:01:50.522-04:00So glad to see all the support and camaraderie whi...So glad to see all the support and camaraderie which this community freely shares.<br /><br />Joanne, absolutely feel free to link to the blog any time you wish. Even if it touches just one more individual at the right moment, it is totally worth it.<br /><br />ThanksLisa Emrichhttps://www.blogger.com/profile/10862232056342347990noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-49511294662851796982011-07-25T09:37:54.643-04:002011-07-25T09:37:54.643-04:00I just re-read every word of this thread. Everyth...I just re-read every word of this thread. Everything is so worthwhile that I'd like to enlighten some of those out there who are not familiar with you, Lisa.<br /><br />If you have no objections, I will post a link on all my social media. So many in the MS community will benefit from reading this and hopefully will continue on your trail.<br /><br />Please let me know whether it is OK to post the link. I look forward to all your posts and the comments of your community.Anonymoushttps://www.blogger.com/profile/17885424804106970371noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-2780873386146222212011-07-25T08:14:59.916-04:002011-07-25T08:14:59.916-04:00I wish I had checked back here sooner for recent c...I wish I had checked back here sooner for recent comments! Sorry for the delay!<br /><br />Linda: I am glad and sorry at the same time that you were able to relate to the things I wrote. First, I welcome you to contact me by e-mail if you want/need to talk further. You can reach me at nourishblog at optonline dot net.<br /><br />Families are hard. Don't wish you could go back, that's water under the bridge. Start over gently with them, mention things more frequently in small increments, don't try to hide your limitations. I went out to lunch with my son last week and the waitress showed us to a booth. Well, I simply do not have the strength in my legs anymore to push myself into a booth (funny the things you take for granted! lol) and I said so. I asked if we could please have a table instead. My son was shocked and upset by this revelation. But it is what it is and I cannot shelter them anymore. And I definitely got the sense he was more solicitous afterwards. <br /><br />Be more gentle with yourself about writing too. You will start when you are ready. In the meantime, write in your head. Frame situations in your thoughts in the way you would write about them. I would guess before too long you will be anxious to write them down.<br /><br />Please keep in touch and thank you for your moving comment.<br /><br />Laurie: Thanks so much for your kind words. I am glad making changes made such a difference for you. I am sorry for the tension between you and your friend. Denial is a powerful defense mechanism, and sometimes, actually a kind one. It keeps us sane when the alternative is simply too, too painful to contemplate. Some of us never are able to get past it. I hope she becomes more accepting of your decisions.<br /><br />Thank you again for your comment.<br /><br />Joanne: Thank you for your warm response and perspective. <br /><br />Lisa: Thank you, as always, for your wonderful site and mission of outreach!<br /><br />Laura: Thanks for stopping by and for your comment!Mariehttps://www.blogger.com/profile/10106720865034468249noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-87552938830175128912011-07-21T08:53:00.875-04:002011-07-21T08:53:00.875-04:00Thanks Marie. I really liked your posts. I have ...Thanks Marie. I really liked your posts. I have a friend, diagnosed 10 years before me. She proudly admits of being in denial and questions why I changed my diet so rapidly and started yoga etc to manage stress. It has stressed our friendship. I am thriving and my MRI has improved. She is still in denial and questions the changes I made in my life. Your posts were comforting. Thank you.Laurie Erdmanhttps://www.blogger.com/profile/16784564172186449759noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-68360834099334947802011-07-13T13:45:19.022-04:002011-07-13T13:45:19.022-04:00Thank you so much for your encouragement
The Lord ...Thank you so much for your encouragement<br />The Lord bless you.Linda Bastahttps://www.blogger.com/profile/13431100250583443302noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-3850595322863195812011-07-12T15:13:21.302-04:002011-07-12T15:13:21.302-04:00Thank you all for joining in the conversation. It...Thank you all for joining in the conversation. It's great to see such response. :)Lisa Emrichhttps://www.blogger.com/profile/10862232056342347990noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-88585609015007441682011-07-12T15:12:19.331-04:002011-07-12T15:12:19.331-04:00@Linda,
Welcome to Brass and Ivory. As you probab...@Linda,<br /><br />Welcome to Brass and Ivory. As you probably read, I also live with RA but not as long as you have. The way the two diseases can affect our lives is surprisingly similar. That's probably true for many invisible chronic illnesses.<br /><br />I have come to enjoy Facebook for keeping in touch with new online friends and older 'in real life' friends. Sometimes it becomes my disease-free zone. :)<br /><br />If you have any desire to start a blog, you should do so. It can be something just for yourself, or you can use it to connect with other people. There is a growing RA blogging community and lots of support being shared openly. If you need any pointers on getting started, just let me know.<br /><br />I'm glad that you stopped by. There are many people here who really understand. Hang in there and I look forward to getting to know you better.Lisa Emrichhttps://www.blogger.com/profile/10862232056342347990noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-44582318975167048272011-07-12T07:38:37.123-04:002011-07-12T07:38:37.123-04:00wonderful posts everyone!!!!wonderful posts everyone!!!!Laurahttps://www.blogger.com/profile/15349928247626849914noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-80805336144250364892011-07-12T07:19:49.955-04:002011-07-12T07:19:49.955-04:00I hope you're missing something when you speak...I hope you're missing something when you speak of chatting about “unimportant” things on line. In December of this year we began our journey to help people with MS and others similarly challenged by introducing them to the contributions of service dogs. The number of and quality of the responses have been unbelievable.<br /><br />Prior to starting this research project I thought social media and blogging were an enormous waste of time and effort. To put it bluntly, I WAS WRONG. <br /><br />Facebook, though it originated as a purely social (to find pictures of college girls) vehicle, has made an invaluable contribution to enhancing people's lives. Yes, it's fun to see pictures of my cousins’ kids and grandchildren, but, because of Facebook and the blogosphere, I've accomplished so much more and had fun in the process. <br /><br />We've been able to spread our message and communicate with people all over the world. I truly believe that our contributions have been and will contribute to be positive.<br /><br />Please, don't be so hard on yourself and try to figure out why you are having so much trouble doing anything. When I've felt that way for long periods I discovered my problem was clinical depression. It may be hard to try to find help, but there is help out there.<br /><br />Good luck and start writing!Anonymoushttps://www.blogger.com/profile/17885424804106970371noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-57307307471193836822011-07-11T17:38:22.616-04:002011-07-11T17:38:22.616-04:00Hello
This is my first time reading your blog. I h...Hello<br />This is my first time reading your blog. I have had RA for 14 years now. I could hardly believe what I was reading.I made all the same mistakes that you did, and I also regret them so, especially the sitting down with family. Not only had I not come to grips with things myself, but they didn't have the interest. And it hurt. (but on a kinder note...guess they were in denial). Wish I could go back.<br />I need to start writing. I keep saying I'm going to, but so often I just can't focus. Instead I bury myself in Facebook and other online activities to occupy my mind and 'chat' about unimportant things. <br />Although you've made me tearful, I want to thank you for sharing. It does help to know that someone really does understand.Linda Bastahttps://www.blogger.com/profile/13431100250583443302noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-50295181808556416652011-07-09T08:49:40.456-04:002011-07-09T08:49:40.456-04:00Thanks for your kind words, Marie. We're work...Thanks for your kind words, Marie. We're working to spread the word about the wonderful influence of service dogs and I'm so happy when someone gets it. Service Dogs Rock!Anonymoushttps://www.blogger.com/profile/17885424804106970371noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-1918032673565896492011-07-09T06:55:26.040-04:002011-07-09T06:55:26.040-04:00Amy: Thanks so much! Watch that nodding! lol Yo...Amy: Thanks so much! Watch that nodding! lol You don't have Lhermitte's, do you?!?! lol<br /><br />I am so glad you were able to relate. It really helps to feel you are not the only one.<br /><br />Judy: Thank you for your kind words my friend. :)<br /><br />Joanne: I am so sorry to hear of your injury! How awful! I hope you are doing better each day.<br /><br />There are definitely many, many other things that could be added to these lists and a service dog is certainly one of them. Thank you for bringing them up, a wonderful option for us.<br /><br />I am so grateful to Lisa for featuring my posts! We really need to help each other through this crappy disease. Lisa's site is a great service.<br /><br />I hope you will all stop by my sites, www.nourish.blogspot.com and www.msrenegade.com. Thanks for your comments!!Mariehttps://www.blogger.com/profile/10106720865034468249noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-62492229372716973392011-07-08T14:11:06.009-04:002011-07-08T14:11:06.009-04:00All your mistakes and good decisions make sense an...All your mistakes and good decisions make sense and most of the MS community will agree with you.<br /><br />I don't have MS but have spent the last month in a wheelchair because I broke my pelvis in Montreal while at the CMSC conference. My simple house with its one step at the entry and one step between the dining room and living room has made my life on wheels very difficult.<br /><br />The only thing you overlooked because there hasn't been sufficient information and most health providers don't understand, is a service dog.<br /><br />A service dog would have helped you in so many ways and would have made your life more enjoyable. Check out our work with service dogs for MS on our website, www.msbeyondmeds.com and on Facebook at MS Beyond Meds.<br /><br />We're working on a research project to demonstrate the positive effects of service dogs on the quality of life of MS patients. You'll be amazed at what you see on our website.Anonymoushttps://www.blogger.com/profile/17885424804106970371noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-87744891515843652592011-07-08T13:40:57.248-04:002011-07-08T13:40:57.248-04:00Great selections, a real-life view of this illness...Great selections, a real-life view of this illness.<br />JudyJudyhttps://www.blogger.com/profile/07141627284221873201noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-49361878292454402642011-07-08T09:08:24.356-04:002011-07-08T09:08:24.356-04:00Thank you so very much for writing this! I almost...Thank you so very much for writing this! I almost nodded my head off agreeing with every word.Amyhttps://www.blogger.com/profile/07448845545173381789noreply@blogger.com