tag:blogger.com,1999:blog-3500936220214961312.post2637330786514965303..comments2023-10-02T04:06:53.185-04:00Comments on Brass and Ivory: Life with MS and RA: To the Caregiver and the MS PatientLisa Emrichhttp://www.blogger.com/profile/10862232056342347990noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-3500936220214961312.post-943773370114331342009-01-23T17:10:00.000-05:002009-01-23T17:10:00.000-05:00I wish that my local neuros office offered all of ...I wish that my local neuros office offered all of those services. <BR/>I have sat and watched how my MS has effected each member of my family and I think it would be great for them to have others to compare notes with.<BR/>Instead, I go to see a therapist once a week and everyone just waits to see what kind of mood I'm in when I get home. <BR/>Everyone should use these services if they're available!Tracy Rambles On And Onhttps://www.blogger.com/profile/16928404796336909746noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-80179872854991608072009-01-23T08:25:00.000-05:002009-01-23T08:25:00.000-05:00Excellent info! I always seem to forget that it's...Excellent info! I always seem to forget that it's affecting everyone. When I'm having a particularly rough day, so does everyone else in the house unfortunately. But I just try to smile and I keep reminding them all how much I love them and appreciate them.~Erin~https://www.blogger.com/profile/16710412631383800874noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-78163414391362335272009-01-22T05:05:00.000-05:002009-01-22T05:05:00.000-05:00Good ideas, Lisa. In my case, the Wookie has only ...Good ideas, Lisa. In my case, the Wookie has only known me with MS and is extremely supportive, going with me to info nights or education sessions, dragging me back home when I'm pooped, and of course, giving me my shot. He's comforting when I have a meltdown and in 3 and a half years, I've never seen him even slightly annoyed at me, even when I'm PMSing. <BR/><BR/>Although he and I are together almost constantly after work hours, he still has his "stuff" he does as I have mine. <BR/><BR/>S.Anonymoushttps://www.blogger.com/profile/08793047835261862513noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-77439321330281441672009-01-22T00:56:00.000-05:002009-01-22T00:56:00.000-05:00Patrick,That is so true!! The commitment and love...Patrick,<BR/><BR/>That is so true!! The commitment and love it takes to be in it for the long haul is amazing and overwhelming, too.<BR/><BR/>At MS Central, I was aiming this piece at folks who are extremely new with the disease and who are likely dealing with the more common symptoms of fatigue, numbness, pain, etc. Definitely much different than the experience one gains after decades of care.<BR/><BR/>Do you know Herrad? She was the feature of last week's Carnival and is PPMS. Her husband is her caregiver and they've had a really tough time of it recently. She developed a pressure sore in July/August and has been bed-ridden since. Maybe, just perhaps, it might heal enough for her to be able to sit in a wheelchair again by March....and she was only dx about 2.5 years ago.<BR/><BR/>In a future 'caregiving' post, I will discuss what family members can do to make it easier for everybody. Things like kids helping with laundry, dishes, etc.Lisa Emrichhttps://www.blogger.com/profile/10862232056342347990noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-73341062713523364502009-01-22T00:33:00.000-05:002009-01-22T00:33:00.000-05:00Excellent topic as living with MS is rarely about ...Excellent topic as living with MS is rarely about one person. NMSS guides are not bad in fact probably the best of possible help for newly diagnosed. However for the long haul of progression of MS and decades of caregiving you have to remember that you will 'care for' the person with MS longer than you ever knew them without MS.<BR/><BR/>Caregivingly Yours, Patrick<BR/>http://caregivinglyyours.blogspot.com/Anonymoushttps://www.blogger.com/profile/14000299655117252000noreply@blogger.com