tag:blogger.com,1999:blog-3500936220214961312.post1685640189329701160..comments2023-10-02T04:06:53.185-04:00Comments on Brass and Ivory: Life with MS and RA: Glitter in the MoonlightLisa Emrichhttp://www.blogger.com/profile/10862232056342347990noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-3500936220214961312.post-79077127541791163412010-12-23T11:10:29.724-05:002010-12-23T11:10:29.724-05:00excellent. I agree wholeheartedly. I have days whe...excellent. I agree wholeheartedly. I have days when I feel bleh, but I think sometimes it is important to experience the anger and other emotions. I mean, based on your comment about how you are fantastic compared to some of the others online, if that is the case, I must be better than fantastic. Some days I am. Others, not so much. <br />If you look around, you can always find others who have it much worse. Then again, you can find others that have it better as well. <br />I really like that xkcd.com cartoon that was posted on someone's blog featured in your carnival - that seems to apply as well.<br />This time of year, depression is common. Add stress. Add various diseases/ailments and you are asking for trouble.<br />Hang in there. And yes, pet the pussies. They have a wonderful way of making us smile/laugh and relax just watching their antics, and I don't know about yours, but mine can sense when something is wrong, or I'm not feeling the greatest. Ziggy our tiger is the love-bug, he will cuddle up next to you and keep you company, as if to say, "hey, it can't be all bad, come on, rub my belly...."MS Day Dreamerhttps://www.blogger.com/profile/16323233788366076180noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-33950830563761580262010-12-20T11:02:57.321-05:002010-12-20T11:02:57.321-05:00Excellent post. :)Excellent post. :)Mishttps://www.blogger.com/profile/18307366150527690373noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-52460638756187836802010-12-19T10:16:30.801-05:002010-12-19T10:16:30.801-05:00Patrick, I had believed that there didn't have...Patrick, I had believed that there didn't have to be a set progression to how symptoms developed. But my new GI doctor was insistent that only really advanced cases of MS experienced neurogenic bowel issues. Then he jumped to examples such as impaction, not simple slowed motility that I was asking about. <br /><br />So I had to ask my neurologist for clarification. It's important to me to really understand these things so that I don't spout off inaccuracies on the web.<br /><br />It's kinda of like an ad which has been appearing online for the past few months using a wheelchair as something to avoid by taking DMDs. The concept would be confusing and insulting to those MSers who started their journey with a wheelchair. <br /><br />Lesions don't know that they're not supposed to touch certain abilities until their lesion friends have had a chance to do their things. :) Some generalizations may be true, such as vision issues commonly being an early symptom, but that's a little different.<br /><br />I have an online MS friend who was diagnosed in her 20s. Her initial attack effected her rectal tone. She had to take care of business manually for awhile and her case is definitely not advanced.<br /><br />Like my neuro said on Thursday, "MS is a crappy disease."Lisa Emrichhttps://www.blogger.com/profile/10862232056342347990noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-11640910859206196052010-12-19T10:11:05.870-05:002010-12-19T10:11:05.870-05:00Judy, great timing on the poem. Very apropos. In...Judy, great timing on the poem. Very apropos. Inner stillness can be rare sometimes. :)<br /><br />Webster, my kitties have been getting lots of extra pets (when they will slow down for them, lol). It's been brutally cold recently and that makes it feel as though this winter is going to be a looooonnnnnggg one. In only a few days, those days will be getting longer though. Must remember that.<br /><br />Kim, thank you! Definitely the inner stillness is something which must be sought and cultivated often. I felt like writing 'something' but this is what came out. Honesty is important. :)<br /><br />Thanks, ladies!!Lisa Emrichhttps://www.blogger.com/profile/10862232056342347990noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-27846194327190990192010-12-18T23:02:12.542-05:002010-12-18T23:02:12.542-05:00I found your observation that a case of MS does no...I found your observation that a case of MS does not have to be advanced for certain symptoms to kick in intriguing. I guess because in the two decades of living with MS in our family, Patti's has always been that way. You made me pause and think that for many there probably is a belief, hope, something that symptoms progress somehow sequentially from less complicated to worse. Yet because Patti's have progressed so randomly, perspective has a whole lot to do with acceptance and anger.<br /><br />Caregivingly Yours, PatrickAnonymoushttps://www.blogger.com/profile/14000299655117252000noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-16559076854574666492010-12-18T19:14:49.166-05:002010-12-18T19:14:49.166-05:00Yes I do understand the blahs, during these season...Yes I do understand the blahs, during these seasons?? I always try to find that peace within! Love your honest post.<br />kimKim@stuffcould....https://www.blogger.com/profile/03566751822418137457noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-41003331826375858302010-12-18T05:08:01.661-05:002010-12-18T05:08:01.661-05:00Many people feel as you do during the holiday seas...Many people feel as you do during the holiday season. All the fa-la-la and merry this and joyous that is bantied about brings no comfort to those of us who are just making it through the day, as short as it is this time of year.<br /><br />Even as we feel the dysthymia, there are parts of the celebrations we do enjoy. Relish those, and surrender to the rest, just as you have to surrender to the MS and RA. Now go pet your kitty.Websterhttps://www.blogger.com/profile/13518858062969978457noreply@blogger.comtag:blogger.com,1999:blog-3500936220214961312.post-87195356893869593612010-12-17T20:22:01.329-05:002010-12-17T20:22:01.329-05:00Interesting you should post this. My poem for tom...Interesting you should post this. My poem for tomorrow is about finding the inner stillness. We're in agreement. <br />JudyJudyhttps://www.blogger.com/profile/07141627284221873201noreply@blogger.com