When I was first diagnosed with MS, there was so much I didn’t know about the disease or about my own body. I thought that I knew, but in looking back I had very little idea.
And to confuse matters, it seemed like I was always one doctor’s visit ahead of my neurologist when it came to recognizing what I needed, such as occupational/physical therapy to rebuild strength in my left hand, a disabled parking placard to avoid becoming a walking hazard, and medication to combat spasticity.
Here was our routine: I would notice a subtle symptom or growing problem and mention it during an office visit. He would examine what could be detected and determine that it was not something to be concerned about. Something would happen between visits related to the original concern and I would dutifully report it. He would then prescribe or recommend whatever service or intervention it was that I originally thought I needed.
At the time, these delays were annoying, but it was a bit entertaining to feel as though I was always one step ahead of my doctor. In retrospect, I feel disappointed that perhaps my neurologist was not as responsive to my concerns as he should have been - a disappointing story which is shared repeatedly among patients in the MS community.
However, there are several things which my doctor got right in his advice and recommendations that I didn't fully appreciate at the time. Here are three of those pieces of wisdom.
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3 Things My Doctor Got Right