Wednesday, November 25, 2009

Warning: Brain Dump Looming Ahead

Hi All,

So here I am on the coast for a change of scenery, on vacation for this week of Thanksgiving, yet still on the computer. Gotta love internet access.

I have several thoughts bouncing around in my head. This past Saturday as I was filming a short video for the How I Fight MS project, I talked about being a musician living with MS. Here at MS Central, I've told small snippets of my musician stories but never in great detail. One of the brief stories which stands out in my mind was relayed in this post: "I had to learn to reconstruct my life." - Jacqueline du Pre

Nowadays, I think less about what I "used to be" and more about what I am.

When I first had optic neuritis (at least the first case which was obvious and disruptive) in 2000, I was in the middle of the busiest month for spring performances - March. The week before, I had played at a local university for an event I can't even remember what it was. Such is the life of a freelancer. I was sick and had snot coming out in copious quantities.

The day I woke up not able to see out of my right eye (on a Tuesday), I had two "kiddie concert" performances with the Fairfax Symphony during the day. I missed the first one while I was visiting my own eye doctor and then going across town to see a retina specialist. I made the 2nd concert after which I was squeezed in to see a neuro-opthalmologist in Rockville, MD. This doctor is the one who diagnosed optic neuritis and who was the first one to ever mention the words 'multiple sclerosis' to me. But of course, testing needed to be done first.

Read this post in its entirety:
On Vacation with MS and RA

1 comment:

  1. "reconstruct" is good, I say reinvent. Either way, great fun!!!

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